{"id":15,"date":"2021-02-12T14:06:03","date_gmt":"2021-02-12T14:06:03","guid":{"rendered":"https:\/\/help2gether.fr\/?page_id=15"},"modified":"2021-03-12T11:22:04","modified_gmt":"2021-03-12T11:22:04","slug":"temoignages","status":"publish","type":"page","link":"https:\/\/help2gether.fr\/index.php\/qui-sommes-nous\/temoignages\/","title":{"rendered":"T\u00e9moignages"},"content":{"rendered":"\t\t
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\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\"help2gether-amis\"\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t
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T\u00e9moignages<\/h1>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t
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\n\t\t\t\t\t\tJe me suis sentie seule tout au long de la maladie de ma m\u00e8re. Tr\u00e8s vite, je me\nsuis retrouv\u00e9e aidante car mon p\u00e8re \u00e9tait dans le d\u00e9ni de sa maladie. A m\u2019investir dans les t\u00e2ches m\u00e9nag\u00e8res, \u00e0 m\u2019occuper de mes petits fr\u00e8res, \u00e0 soutenir ma m\u00e8re. Sans arme, sans connaissance, sans aide, sans r\u00e9f\u00e9rent. M\u00eame mes profs fermaient les yeux. Jamais aucun soignant, ni m\u00e9decin qui suivaient ma m\u00e8re ne se sont pos\u00e9 la question de m\u2019aider. J\u2019\u00e9tais l\u2019aidante naturelle. Sans oublier les phrases\nfaciles, culpabilisantes de l\u2019entourage du style \u00ab Laisse tomber, c\u2019est pas \u00e0 toi de g\u00e9rer \u00e7a \u00bb ou au contraire \u00ab C\u2019est toi l\u2019a\u00een\u00e9e, c\u2019est ton fardeau \u00bb. Mais c\u2019est impossible pour moi, je ne peux pas l\u2019abandonner. M\u00eame si, au quotidien, c\u2019est devenu rapidement un poids dans tous les sens du terme. Comme on nous aide pas, on peut devenir dur, maltraitant jusqu\u2019\u00e0 retourner sa col\u00e8re contre soi. Aujourd\u2019hui ma m\u00e8re va mieux psychologiquement. Elle est aid\u00e9e chaque semaine par des professionnels. On commence \u00e0 sortir de l\u2019enfer. J\u2019ai l\u2019impression de retrouver ma m\u00e8re et de reprendre ma place d\u2019enfant, \u00e0 26 ans. Le plus fou dans tout \u00e7a c\u2019est que ma m\u00e8re est devenue mon aidante pour perdre du poids. Aujourd\u2019hui, c\u2019est \u00e0 moi de me construire.\n\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t
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\n\t\t\t\t\t\t\"Nessie\"\n\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\tNessie<\/span>26 ans<\/span><\/cite>\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Nessie, 26 ans, aidante depuis ses 14 ans, de sa me\u0300re atteinte d\u2019un syndrome parkinsonien<\/p><\/div><\/div><\/div>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t

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\n\t\t\t\t\t\t J\u2019aide \u00e0 tout \u00e0 la maison, faire \u00e0 manger, faire les courses, m\u2019occuper de mon petit fr\u00e8re. C\u2019est compliqu\u00e9 car j\u2019ai aussi des probl\u00e8mes de sant\u00e9. Mais je dois faire avec, je n\u2019ai pas le choix. Mes parents en sont conscients et ne le vivent pas bien. Surtout que mon autre fr\u00e8re se repose aussi sur moi. Heureusement, j\u2019ai des\ncopains et je suis entour\u00e9 par la famille. Finalement, aider mes parents au quotidien, c\u2019est naturel depuis que je suis tout petit.\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t
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\n\t\t\t\t\t\t\"Theo\"\n\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\tTheo<\/span>17 ans<\/span><\/cite>\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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The\u0301o, 17 ans, dont les deux parents sont handicape\u0301s<\/p><\/div><\/div><\/div><\/div><\/div><\/div>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t

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\n\t\t\t\t\t\t\u00abLa maladie de Huntington s\u2019est d\u00e9clar\u00e9e de tr\u00e8s bonne heure chez mon papa. C\u2019est une maladie d\u00e9g\u00e9n\u00e9rative du syst\u00e8me neurologique qui lui a \u00e9t\u00e9 transmise par sa m\u00e8re. C\u2019est au coll\u00e8ge que j\u2019ai commenc\u00e9 \u00e0 prendre conscience de la situation. Quand il a \u00e9t\u00e9 mis en arr\u00eat de travail pour inaptitude. L\u00e0 j\u2019ai r\u00e9alis\u00e9 que les choses allaient changer pour lui et pour nous.\nQuand les sympt\u00f4mes ont commenc\u00e9 \u00e0 se manifester et se voir\nquotidiennement, c\u2019\u00e9tait tr\u00e8s dur \u00e0 accepter de ne pas avoir un papa \u00ab normal\n\u00bb.\nJe ne parlais que tr\u00e8s rarement de ma situation \u00e0 la maison par honte ou peur d\u2019\u00eatre jug\u00e9e par les autres. Je ne parlais jamais de ce qui se passait \u00e0 la maison. Pour moi, vivre une adolescence normale \u00e9tait un bon \u00e9quilibre. En laissant les probl\u00e8mes de \u00abgrande\u00bb une fois la porte de chez moi pass\u00e9e. De pouvoir profiter sans porter avec moi le bagage du papa malade. Sans aucune piti\u00e9 de la part de mes amis. Pour les coups durs, je pouvais compter sur mon fr\u00e8re.\nMais ce ne fut que plus tard, quand la maladie a commenc\u00e9 \u00e0 le diminuer que\nmon r\u00f4le de jeune aidante est arriv\u00e9 naturellement. Enfin disons jeune aidante en second, car ma m\u00e8re g\u00e9rait presque tout. J\u2019ai toujours refus\u00e9 de faire certaines t\u00e2ches comme le laver. Pour me prot\u00e9ger. Au bout d\u2019un moment, c\u2019\u00e9tait devenu ing\u00e9rable pour ma m\u00e8re, surtout que je n\u2019\u00e9tais plus \u00e0 la maison. Avec des cons\u00e9quences sur sa sant\u00e9 \u00e0 elle. On n\u2019avait plus le choix, mon p\u00e8re a \u00e9t\u00e9 plac\u00e9 en Maison d'Accueil Sp\u00e9cialis\u00e9e (MAS). Je n\u2019ai compris que r\u00e9cemment le r\u00f4le que j\u2019avais jou\u00e9 \u00e9tait aussi celui d\u2019aidante.\nJe garde une exp\u00e9rience tr\u00e8s positive de tout \u00e7a malgr\u00e9 les moments difficiles,\navec une maturit\u00e9 acquise tr\u00e8s t\u00f4t. Il fallait profiter de chaque moment de bonheur et de qui\u00e9tude que le quotidien nous apportait.\u00bb\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t
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\n\t\t\t\t\t\t\"Lucie\"\n\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\tLucie<\/span>29 ans<\/span><\/cite>\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Lucie, 29 ans, aidante de son pe\u0300re atteint de la maladie de Huntington<\/p><\/div><\/div><\/div><\/div><\/div><\/div><\/div><\/div><\/div>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"

Je me suis sentie seule tout au long de la maladie de ma m\u00e8re. Tr\u00e8s vite, je me suis retrouv\u00e9e aidante car mon p\u00e8re \u00e9tait dans le d\u00e9ni de sa maladie. A m\u2019investir dans les t\u00e2ches m\u00e9nag\u00e8res, \u00e0 m\u2019occuper de mes petits fr\u00e8res, \u00e0 soutenir ma m\u00e8re. Sans arme, sans connaissance, sans aide, sans r\u00e9f\u00e9rent. … <\/p>\n

Continuer la lecture de « T\u00e9moignages »<\/span><\/a><\/p>\n","protected":false},"author":1,"featured_media":0,"parent":9,"menu_order":1,"comment_status":"closed","ping_status":"closed","template":"elementor_header_footer","meta":{"footnotes":""},"class_list":["post-15","page","type-page","status-publish","hentry"],"yoast_head":"\nT\u00e9moignages - Help2gether<\/title>\n<meta name=\"description\" content=\"Je me suis sentie seule tout au long de la maladie de ma m\u00e8re. 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